Laryngomalatia · Uncategorized

Caring for a Child with additional needs

So I guess due to my PND I have not been very open about our miracle boy Leo. While born premature after being discharged everything seam to go smooth he was meeting milestones and slowly putting on weight. The one thing that was wrong which I had never experienced before was reflux this was new to me and my heart broke with his constant screaming in pain and projectile vomiting. He was also making this strange noise while feeding and I felt like something was wrong.

He was put on reflux medications but it did not seam to improve. Laying on his back in bed I would wake to him gurgling his vomit and rush up to turn him on his side to clear his airway. One thing we had was a sound and movement monitor on his bassinet but never did I think that it would ever go off you know its only there for reassurance.

Until one night it went off I got up and his lips were blue straight away I picked him up and he started to breath. He use to go blue when he was feeding as suck swallow breath is quite difficult for premature babies. IMG_3459

This was something I bought up with the Maternal Child Health nurse and was told that it was probably just a fault. So reassured I kept on with live loving Leo.  Until it happened again and then again and then one day I had him in a Stokke Newborn seat next to me and I noticed him stop breathing go blue around his lips and grey. I quickly undid the belt and picked him up and he started breathing again.IMG_3494

Concerned that it had now happened more than once and I had noticed it I called our Paeditritian we went into see her I mentioned the gasping for air the projectile vomiting still even with the reflux medication and the noise he made while feeding which I had a video of so showed it to her right away she called the ENT for an urgent referral.IMG_3597IMG_4603

We went to see the ENT not long after and the Dr did a scope said it looks like he has a floppy larynx and he organised for RCH at home to do an Oximetry test. IMG_5568

While this was done urgent for some reason even though the nurse said the results would be done urgently as they had it set not to go off unless his oxygen saturations went below 60 SPO2 I told the nurse I was up most of the night as the alarm went off all the time to check him and turn off the alarm. We did not receive the results until we got an urgent call on October 3rd.IMG_5574IMG_5576IMG_5578IMG_5580IMG_5582

It was then we were told that our little man had a serious problem that he was dropping his SPO2 levels so low we are lucky he is not a SIDS baby. I thank the lord that we purchased the Anglecare sound and movement monitor if we had not had this he would not be with us today.

We were told that he has a rare condition called Laryngomalatia and that he needs an urgent operation the next day that we needed to come into the hospital to sign the forms for the surgery the next day we were called by the intake nurse and told what we needed to do to prepare Leo for surgery and asked to come in at 7am. The ENT told me to google SUPRAGLOTTOPLASTY which I did thats the operation that he was going to have.

I can’t believe that we were about to go through this we had to get my brother to fly in to look after our other two kids and get them to school hubby had to get time off work it all happened so fast it was like a tornado. We were told that he would need to be in ICU after the surgery which I was quite scared about so we barley slept that night.

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Crochet · Uncategorized

Pastel Rainbows Everywhere

So I saw this made by a lady on a Facebook group her name was Wendy and I absolutely loved the colours and pattern so I thought id give it a go which I did.

Its called Beautiful Shells and is available as a free download on Ravelry.

And the colours are just Devine and I purchased them From LoveKnitting

The colours I used are

Soft peach 1240
Apricot 1026
Lemon 1020
Spring green 1316
Sherbet 1034
Cloud blue 1019
Wisteria 1432
Clematis 1390
Candy floss 1130
Fondant 1241
Cream 1005

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I just love it its just so eye capturing and makes me really wish I had a girl.

 

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I also for the first time attempted the Starburst 12 point star pattern as I thought it would also go well with the same colours however I did not use cream I just went with the rest of the colours. And it turned out amazing its around 115-119 cm point to point.

I used another free pattern Rainbow Ripple Blanket.

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At one stage I stopped counting and accidentally added a few stitches and had to pull it apart which was frustrating.

But eventually I finished and  it again is just so Beautiful. I have decided to make a few smaller ones for this years donation to the Special Care nursery for Leo’s 3rd Birthday Donation. This one is available for sale in my etsy store. CROCHETOVERARAINBOW

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Crochet · Uncategorized

Persian Tile Throw

After a friend completed Janine Crow’s Persian Tile Blanket I decided it was maybe time for me to give it a go so after getting the pattern I headed to The Unwind Cafe to choose some Bendigo Woollen Mills Luxury 8 Ply Yarn I did not want to go with the traditional colours like Janine has on her website. I wanted completely different to what everyone else has done. So I chose these beautiful colours.

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And while the crocheting of the hexagons did not take long to do they did sit there for quite a while as I was thinking about joining them and delaying doing it. img_2030

I did change the boarder as I thought it needed a bit more than what it had and I have to say I do like it.img_2082img_2083

The colours from Bendigo Woollen Mills luxury Yarn

348 Cerise

344 Sunflower

367 Purple Storm

349 African Violet

332 Lake

341 Lavender

312 Frostimg_2084img_2087-2

I am so surprised how well it actually turned out its just beautiful and one that I have actually kept.

Uncategorized

Rainbows

I have been super busy making baby blankets around here for friends and family  the first one is just granny stitch in the colours of the rainbow for our beautiful photographer the rainbow has meaning after a loss a baby is called a rainbow baby so I knew as soon as she said she was pregnant I had to do something bright and colourful.

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Its just stunning and ts just stunning and the colours all blend so beautiful together and this little girl is due I. September I have made it out of bBemdigo  woollen mills cotton for the summer months and I can’t wait to give it to her soon.

 

The second is for a little girl who we all thought was going to be a boy her mummy requested rainbow colours like another one I did so I adapted it a little this is by far my favourite pattern to do its so gorgeous and I decided to finish it off with a lacy boarder which turned out way better than I expected.

 

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Uncategorized

Very Hungry Caterpillar 2nd Birthday Party

Our little man turned two this April and while we did not have a huge party like we did for his first birthday we did have a small get together with family and close friends.

Last minute minute I decided that it was going to be Hungry Caterpillar theme.

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It started with a quick Pinterest search and board to get some Ideas decorations and food which turns out really easy with print offs I found and only required me purchasing what the Very Hungry Caterpillar ate which I then assembled into a plate. How easy can a birthday  party get when all you need to do is cut fruit?image

 

I purchased the napkins and plates from IKEA and they were a bargain on sale in the reduced section 49cents . I purchased some fabric from Spotlight and made some little crown hats for the kids to wear and keep for dress- ups. I also made the bunting which was really easy I just googled how to make bunting and followed a youtube video.image

 

I hand made the Hungry caterpillar with Fondant and Gumpaste. And a couple of colours of food colouring and just tie to shape it like a caterpillar on the book. Warning if you do this I highly recommend using gloves otherwise you will end up like me with green hands.

 

The cake was in no way perfect I had ran out of time to put it together I made the butter cream in my Thermomix TM5 using the recipe chip but It did not have enough icing so I added a heap more until I was happy it tasted like butter cream and was beautiful and whipped. For those in AUS who want to know how to get white butter cream use Lurpark Butter. The cake as as easy as adding colouring to equal quantities of the batter. I quickly slapped it together the night before and popped it in the fridge to set.

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One of the other things I did for the kids was make some play dough this was done in the Thermomix and my daughter added the food colouring to some read and green and some eyes are pipe cleaners for ears I was so grateful for her help I would have forgotten about it and not had time.

Overall he had a ball.

Uncategorized

Change of hair colour

We have been going through so big problems at our place which has really taken its toll on us especially me. My post narak depression is on full swing needing a change of meds to start feeling myself again while im not there yet today I  actually got an hour to myself and has my hair done.

 

Im so predictable and always go with the same or simile colours doe the seasons this time I went for something completely different I think I almost scared my hairdresser when I showed her the pic.

I left it on her hands and she did the closest she could to get the effect I was wanting. I think even she was surprised when it was finished how amazing it looks I absolutely love it.

Now all I need is a tattoo.

Uncategorized

Flower crochet squares blanket

I have been on a bit of a blanket craze at the moment making them for everyone who has babies being born or birthdays coming up.

I want to make a keep sake that they will hopefully have until they have children.

I found this square pattern on Raverly and fell in love with it so I went to The Unwinde Cafe to pick some luxury wool from Bendigo woollen mills.

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The granny square is gorgeous the colours really compliment each other image

This was made to fit a cot but be big enough so it could go on a single bed later I joined with the grey colour and made 4 grey and 4 pink squares so as to break it up a little bit.

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I then did a row of grey around the blanket and followed with all the colours there was one stage where I did not think that the green and the yellow were the look I was going for but in the end I ended up happy with the boarder around it. image image image image

I love this pattern so much that I am doing a first communion blanket for a friends daughter.

I will add to the blog as soon as it’s finished. But the colours I’m using are to die for.