Laryngomalatia · Special Needs

Supraglottoplasty – Surgery Day

After we went to the hospital the next day his surgery got cancelled as they had no surgical beds in the PICU and as its his airway thats the issue this was a necessity so we went the following week with the promise that it would not be cancelled they had a guaranteed bed for him. Being so young he was first cab of the rank which made things easier as he was starting to get a little hungry.

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The above pic is of my gorgeous boy before his surgery. I think he had been crying a bit as he was hungry hence the red cheeks. Daddy was with us and we took turns trying to calm him. We were taken into pre surgery where he was weighed and measured and had his little tiny identification bands on, he also had his observations taken. IMG_6394

We managed to get him to sleep for a bit before he was taken for surgery. Mummy got dressed up in her clothes because I wanted to be the one when he went to sleep.IMG_6397

In Anaesthesia he was wrapped nice and tight and given some gas to make him go to sleep. He was pretty good and did not fight it too much I gave him a kiss and told him I would see him later. We were then shown to the ICU and told they would come and get us from the parents room so we went and got some lunch and sat and waited. I was so nervous as I did not know what to expect three hours later they came and got us they told us they were having troubles trying to settle him as he was in a large amount of pain so it took them a while before they could come and get us.IMG_6398

This is the pic of what we walked into an ICU room with all these monitors and our little man with a breathing tube down his nose monitors attached to his chest, a canal in his foot.IMG_6406

His nurse introduced herself to us and we were told what was going on with him how the surgery went and how he is going now. IMG_6407

I have to admit for me the scariest thing was seeing he pain in his eyes he looked terrified and as a mum I could not do anything to help him which broke my heart. His face was so swollen as a mum you don’t want to see anyone in pain or like this.

 

I thought id try and explain what Laryngomalatia is and in the best simple words I can describe it is floppy tissue in the larynx which causes the airway to be obstructed so essentially an upper airway defect and the supraglottoplasty is the surgery that is performed to try and correct it they try to trim some of the tissue but not too much so as it damages his vocal cords. Not everyone who has laryngomalatia needs surgery it depends on how bad the laryngomalatia is that determines surgery. Leo had the worst type Severe Laryngomalatia.IMG_6408

I was told that I could touch him which of course I did and I proceed to stroke his head and had my hand on his chest to try and comfort him in a way that I could as he could not be picked up. They had him wrapped up like he was in a little nest.IMG_6419